Muscular Dystrophy

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NDIS

Sep 24, 2020
2 min

Study Reveals Similar Spinal Surgery Outcomes in Rett Syndrome and Cerebral Palsy

Patients with Rett syndrome have similar spinal surgery outcomes to those of people with cerebral palsy (CP), according to new research.

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Google’s Project Euphonia Asking Patients to Help With Speech Recognition Technology

Jonathan Shar

Aug 28, 2020
2 min

Google’s Project Euphonia Asking Patients to Help With Speech Recognition Technology

Team Gleason and CureDuchenne have teamed with Google’s Project Euphonia to make automated speech recognition more accessible to people wit

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Viltepso Commercially Available in the US for DMD Treatment

Jonathan Shar

Aug 26, 2020
2 min

Viltepso Commercially Available in the US for DMD Treatment

NS Pharma‘s Viltepso (viltolarsen) is now commercially available in the U.S. for people with Duchenne muscular dystrophy (DMD) amenable to e

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Jonathan Shar

Aug 12, 2020
3 min

FDA Approves Targeted Treatment for Rare Duchenne Muscular Dystrophy Mutation

Today, the U.S. Food and Drug Administration granted accelerated approval to Viltepso (viltolarsen) injection for the treatment of Duchenne

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MD Advocates Offer Advice for Students With Neuromuscular Disorders Amid COVID-19

Jonathan Shar

Aug 6, 2020
3 min

MD Advocates Offer Advice for Students With Neuromuscular Disorders Amid COVID-19

The event featured Christopher Rosa, PhD, former MDA board member and current assistant vice chancellor for student inclusion initiatives at

5 views0 comments

A Year After Gene Therapy, Boys With Muscular Dystrophy Are Healthier and Stronger

Jonathan Shar

Jul 31, 2020
3 min

A Year After Gene Therapy, Boys With Muscular Dystrophy Are Healthier and Stronger

Two and a half years ago, a study published in Science Advances detailed how the gene-editing tool CRISPR/Cas-9 repaired genetic mutations r

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A Boy With Muscular Dystrophy Was Headed For A Wheelchair. Then Gene Therapy Arrived

Jonathan Shar

Jul 28, 2020
8 min

A Boy With Muscular Dystrophy Was Headed For A Wheelchair. Then Gene Therapy Arrived

This is the story of a fatal genetic disease, a tenacious scientist and a family that never lost hope.

5 views0 comments

Virtual Walk & Roll Event On Sept. 12 Targeting Muscular Dystrophy Cure

Jonathan Shar

Jul 28, 2020
2 min

Virtual Walk & Roll Event On Sept. 12 Targeting Muscular Dystrophy Cure

With a goal of finding a cure to facioscapulohumeral muscular dystrophy (FSHD) by 2025, the FSHD Society’s third annual Walk & Roll To Cure

2 views0 comments

Jonathan Shar

Jul 24, 2020
4 min

Researchers develop a novel method for diagnosing Duchenne Muscular Dystrophy

Duchenne muscular dystrophy (DMD) is a rapidly progressive form of muscular dystrophy caused by a mutation in the DMD gene.

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A Good Sense of Humor Makes my Duchenne Diagnosis Easier

Jonathan Shar

Jul 21, 2020
2 min

A Good Sense of Humor Makes my Duchenne Diagnosis Easier

I like to think I’m pretty funny, at least that is until I work up the courage to say something in a conversation. A lot of my humour has to

14 views0 comments

Scientists create synthetic DNA-like molecules to battle muscular dystrophy

Jonathan Shar

Jul 21, 2020
2 min

Scientists create synthetic DNA-like molecules to battle muscular dystrophy

Muscular dystrophy is a group of genetic diseases causing progressive muscle weakness and damage over time.

1 view0 comments

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